Christa Lei (they/them) speaks about their life, what it looks like with an endometriosis diagnosis, and waxes on about transition.
Midwest Love Fest 2024: Use code 'CHRISTALEI' for 10% off registration. Click here to check it out!
Mentioned/References:
Resmaa Menakem: https://resmaa.com/
Millie, my pelvic floor therapist: https://www.med-bar.com/team (if you see her, let her know I sent you!)
Automated Show Transcript (sorry, I don’t have the spoons to do it myself right now, so apologies):
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Hey, everyone.
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This is Christa from Is This What You Want?
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And I'm here hosting my first podcast episode of 2024.
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I know it's taken long enough.
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I promised this a while ago.
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So whoopsie daisy.
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I am here now.
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But part of the reason I wanted to make this episode is because I'm going to be on
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a shit ton of other podcasts this summer.
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Spoiler alert.
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Leading up to my presentation at Midwest Love Fest this year, August 17th, 2024.
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Um, it's, uh, SW love fest.com.
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And then you can click the Midwest love fest.
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Also the links in my bio and in my events on my website and also kind of everywhere.
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I, if you read, is this what you want?
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I'll probably even post like the link there.
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So, um,
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Yeah,
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if you want to go see me talk about disability justice framework,
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which is like care webs,
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care plan,
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pod mapping,
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which I call constellation mapping.
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And yeah, those things in the frameworks of non-monogamy and decolonizing the nuclear system.
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uh cis het mononormative relationships um please join me uh you can get 10 off
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registration fees uh with my code CHRISTALEI that is c-h-r-i-s-t-a-l-e-i
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um i'm really not going to do much editing when it comes to this uh first episode
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just because it's kind of quick and dirty and i'm really just trying to see what it
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sounds like um i recorded like five minutes of this already and it turns out my mic
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was on freaking mute so hey love that for me um i probably won't post the video but
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we'll see i don't know um
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Maybe I'll be vulnerable with y'all.
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But yeah, the reason I'm doing this is because I've always wanted to try it.
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But I also just like the way my voice sounds because I'm vain and gross and whatever.
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No, I think...
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What comes out in conversation is much different than what comes out on the written page.
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Right.
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And I come across a little different both ways.
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I'm a little I'm not going to say I'm a little more polished in writing because I
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think part of the reason why my writing resonates with some people is because it's
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so raw.
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and fresh and visceral and emotional.
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I don't know.
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That's what people have told me in the past.
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It's been a long time since I've built up the practice to do it again.
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So yeah, this is also a journey for me.
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But I'm going through kind of a weird state of transition in my life.
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I obviously don't want to comment on it too much since I'm still very fresh in it and
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processing and honoring everyone else that has been along this journey with me.
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And so that's all I'll say about that.
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But on the bright side, you know, I don't need surgery yet.
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So that's one of the things I'm going to talk about today is content and trigger warnings.
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Like I'm going to talk about body horror stuff,
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like stuff about the body,
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stuff about the reproductive system that
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and medical stuff,
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and also medical trauma,
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and just like a person of color,
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a person of global majority,
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a lot of racialized and intergenerational trauma that belongs in our DNA.
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And I'll also probably talk about a lot of that stuff,
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and if I do have any show notes or sources,
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I will put that in the description on Substack,
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if that's where I decide to release this one.
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knows probably um and yeah because of all this stuff going on i probably won't
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write a lot of new articles for a little bit just because it's it's been hard for
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me um
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given my my coping with multiple stages of grief and also multiple types of grief
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collectively too I know I know it's been really hard for a lot of us watching
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watching genocide happen in front of us and one of the things that amongst all the
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grief that I've been experiencing is just like a collective grief that I want to
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like sit with and acknowledge and it's painful and
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You know, I have the privilege to come out as a queer, non-binary person of color, as a body of culture.
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I'm using that from Resna Menakem's understanding and terminology.
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But, you know, for me, it's...
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for me it's been hard to sit with some of the stuff that's been happening and it's
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been really challenging,
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especially because of like API heritage month,
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you know,
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sitting and having lost friends based off of their Zionist beliefs.
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I'm going to get a lot of shit for this, but like, I need to stand up for what's right.
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Right.
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So like, yeah, free Palestine.
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What's happening in Gaza and Rafa is like fucking terrible.
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And,
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yeah and yahoo's a fucking shit show and i know it's very nuanced but just like the
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black lives matter stuff was not about like you and you centering yourself as like
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assumingly a white person um oh i'm gonna get in trouble for that um i don't
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understand the nuances of the issue but
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from what I have read, heard, and seen, I cannot stand for genocide.
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I cannot stand for this government, our government as the United States.
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I live in the US, unfortunately.
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And so seeing my government not do anything about this,
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and most of the people and most constituents don't think we should be involved in
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giving money to aid
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genocide um i you know this is still a platform they're like what 300 of you and
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still i want all 300 of you to know that like my integrity lies in speaking out
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against um speaking up for palestine for people who have you know settler
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colonialism i'm really bad at being an academic um not good at it um
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But yeah, anyway, so that's part of collective grief, right?
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I can hold that.
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I can name that.
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I can let that flow through.
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More personally, I think it's been hard because I've been on this health journey for a long time.
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I'll eventually write about it, I think.
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But as of the last couple of years, ever since getting my IUD in...
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i started and like i said content warning this is gonna be gross body shit but
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whatever you're in it now eight minutes in you're you're in it now so you're gonna
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have to deal with it um and if not shut it off shut it off at any time like you you
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have all my permission to take care of yourself that is what you should be doing um
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but uh 2021 i got this this kylena in um this hormonal iud that is meant for people
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who have not had a baby um it's smaller so like not as painful as you enter um and
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to be quite honest it was a really traumatic experience for me um
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Not knowing what I know now about my body, having to get the IUD in alone.
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I went by myself to be told all I have to do is take a Tylenol, which I did.
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It still fucking hurt.
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And to have my doctor dismiss me when I kept on trying to advocate for myself as I
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was dealing with the process of adjusting to this IUD and the terrible,
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terrible side effects it had for me.
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So, yeah, it was really traumatic for me.
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I don't love to relive that.
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And I'm sure other people who aren't cishet white appearing people,
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specifically men,
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right,
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who don't have to deal with this issue and like don't have to deal with like being
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gaslit and like dealing with providers who just don't have the time or capacity for
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them or the expertise.
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Right.
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So, yeah, I stuck with this.
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I can't believe I stuck with this doctor for so long.
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But it was really painful for me.
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And I noticed after getting my IUD and that I would like throw up once a month.
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It took me about a year to realize and track that.
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I thought it was other things like I started going to acupuncture regularly and it
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was like,
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oh,
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I thought it was the cold because the cold like really makes me want to throw up.
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And it also explains a lot of my other symptoms.
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Essentially, like we're what now three years into this, three years into this.
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to this.
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And at the beginning of the year,
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I switched doctors because I kept on having pelvic pain and my pelvic,
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sorry,
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my primary care physician,
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I switched to a primary care physician,
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different primary care physician.
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And she was like, you know,
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I know you're in the middle of seeing a specialist for this,
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but I think I want to send you to a pelvic floor therapist.
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And I wrote an essay about this.
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I love my pelvic floor therapist, Millie.
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I'll put her link in the bio.
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She's wonderful.
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She was one of the first providers who believed me and was like,
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yeah,
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I think you should go to a specialist and see them for endometriosis.
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And I don't have to talk about endometriosis.
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I don't know.
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The fucked up thing about it is there's no real way to diagnose it other than going for surgery.
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And essentially,
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what was happening in the last six months has been me figuring out if I have it in
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the first place.
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My doctors and I think that I do based off the symptoms and how long it's been and
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seeing how my body reacts to medical management of it.
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And yeah, I got a new IUD in and I took support with me, which was good.
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I had a good support system with me during that.
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So I'm very grateful for that person who held my hand during that really traumatic time.
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But
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And yeah,
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it's I switched to a higher dosage IUD because progestins and progesterone in general,
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you want to it's basically like from what my understanding is and I'm I'm a
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decently smart person.
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I come from some privilege.
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I have I have doctors in the family.
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Right.
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I worked in health care for a long time.
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I understand, you know, being someone who is disabled and like knowing my body well.
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I knew it was up.
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But from my understanding,
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because there's not a lot of research done right,
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obviously,
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no one wants to spend money on anyone but cishet white men.
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Fucked up.
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But
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from my understanding,
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uh,
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the imbalance of hormones on endometriosis,
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like having more estrogen is the enemy.
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So a combination of things with my hormonal health were happening.
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Um, with the Kyleena, essentially it was just enough progestin.
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And my body was also rebounding from all the hormones that I've been on over the years.
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I have PCOS amongst other things.
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And PCOS at that time, when I was diagnosed almost half my life ago, um,
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they didn't really know how to treat it you know they they kind of just threw
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hormones at it and i do love that doctor and i think she's still working i don't
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know if she like fully retired but girl props to you um she did my first surgery it
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was my first surgery um yeah no she's great she uh she's my she was my mom's
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gynecologist so she's cool um shout out to
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Dr. Yamada, you're great.
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But yeah, you know, we didn't have a lot of information back then.
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And, you know, Hawaii is a small place.
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I'm from Hawaii.
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I was born and raised there to immigrant parents, as I'm fairly open about.
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But yeah,
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there's just not a lot of special,
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you know,
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one of the things that I'm really grateful for this year,
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I have ADHD,
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so I'm going to jump around from place to place.
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You're just going to have to deal with it.
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One of the things I'm really grateful for is I was really with all my hopes and
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dreams and all this stuff.
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I really thought I was going to move back home within the next year or two.
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And maybe I will.
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I don't know.
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But the problem with being on a small island state is that the resources aren't as great.
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So there weren't as many specialists and I ended up looking for a bunch and most of
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them had to do with fertility.
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And to be honest with you,
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like as a non-binary person who did go to a fertility doctor and a reproductive
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specialist to inquire about freezing embryos and eggs and such.
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And also actually like, all right, the pro tip and life advice, life hack.
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I will have these life hacks, I think, scattered throughout little nuggets and gems.
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If you are thinking of having a child and you're chronically ill,
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you should ask your doctor,
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specifically your gynecologist,
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if they will do a preconception consultation with you.
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And that's about an hour fully like an hour, hour.
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And I think mine was an hour and a half.
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That's the one thing my traumatic experience from the practice that I was working
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at was,
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is that she was like,
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I'm not going to be able to handle her care.
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You're a very complex case because you're chronically ill.
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But I will make an appointment with this person who is a high risk obstetrician
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gynecologist that can help you.
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And we'll explain it.
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And she booked about, it's about an hour, hour and a half of full just talking one-on-one with,
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The physician will review your chart and it's called a preconception consultation.
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I think those are super important.
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Essentially,
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she explained to me that as someone with my chronic illnesses,
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that carrying a full pregnancy to term and having a baby would be really hard for
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me in my lifestyle.
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Given that I'm on so many medications and given that I'm used to with everything
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going on,
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I do rely on medical advice.
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interventions alternative medical interventions um yeah basically like they they
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don't want you to smoke weed obviously and like have weed and i get it you don't
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know what's gonna do
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But they were like, yeah, if you told me that, I would threaten to call the pigs.
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So I was like, no, I don't want to deal with that and tell your social worker or whatever.
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I was like, no, I don't want to deal with that.
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Let's not.
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But part of it is I would have had to stop taking some pretty
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life-saving medication and then my lifestyle would drastically change and
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essentially they told me starting at like at the third the beginning of the third
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trimester and the end of the second trimester if I had a baby I would have to
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essentially go to the doctor two to three times a week which is basically like a
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full-time job for me anyway as a disabled person so it's a second job and
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You know, I have now seen what hormones have done to me.
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And it's funny because when people talk about endometriosis,
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one of the cures,
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quote unquote,
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is pregnancy.
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And honestly, like, nah.
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And yeah, it's also really hard as a queer non-binary person to like deal with.
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deal with this shit um dealing with the reproductive system that i was born with
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and having to cope with these issues even though i don't necessarily kind of
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identify as like a female anymore um yeah so it's been hard it's been i think a lot
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of that deep grief um in my body has it's you know it's
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I'll be very frank with you and say it's been really challenging to have to learn and have to readjust.
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A lot of hopes and dreams, it's kind of an existential crisis for me in that disability is stifling.
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It is...
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it limits me to what my capabilities are,
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but it brings me the blessing of knowing what those things are and knowing when to
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slow down and stop and take a breath and explore like what these negative emotions
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or feelings are in my body.
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And, you know, it's also kind of a spiritual thing.
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Right.
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Um, so yeah, it's, it's been, it's been a minute.
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Um,
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something i'm looking forward to amidst all the tldr i don't have to get surgery
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yet i say yet because obviously like with medical management and essentially with
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endo you can only be diagnosed through surgery so i don't technically know if i
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have it though we pretty are pretty sure that i do given everything at all my
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symptoms and reporting um
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And yeah, it feels weird.
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I think the body grief that I feel, the being disconnected to my body is so weird.
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I've also spent the last year with a new therapist.
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I am going to talk about this in an essay that I am writing.
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But yeah, I broke up with my old therapist after seven years and it was...
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weird.
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Um, I really didn't handle it the right way.
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Uh, but I did, you know, I did it the best that I could.
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I think given the circumstances I did,
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I did what I couldn't,
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it was hard and painful,
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but ultimately it was fine.
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Um, and I've been working with a new therapist who I really love.
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Um, and just, just kind of what more of what I need right now.
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Um,
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I'm forever grateful to my old therapist.
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Like she taught me so fucking much.
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It just got it just got time, you know, like therapists, like people and relationships and in any sort.
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They're not meant to be there forever.
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They're there to walk alongside you to help you get to kind of a baseline.
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And once you have those tools for yourself, it it it turns out better and brighter.
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So I'm extremely grateful for the seven years Saturn square of your astrologers.
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You'll understand what that means.
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The Saturn square of, of our working relationship together.
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Yeah, it's, it's, it's, it's been beautiful and it's been painful and,
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And breakups are hard, especially with, with like providers that you really trust.
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Like,
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and I know that therapists and part of like psychotherapy training is like talking
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about the therapeutic relationship,
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but this person was like,
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this therapist of mine was kind of like a second mom in many ways.
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And I think that's also why it was time to go.
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Um, because I, I needed to spread my wings a little bit and focus on other stuff that they didn't, uh,
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that she didn't necessarily have the expertise in.
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Um, but I really love, I was also way too expensive.
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She was out of pocket and I,
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I could not shoulder like a one K plus still at the end of the month anymore.
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Um,
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I am really lucky that my family helped subsidize that for a long time,
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but it just,
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in the spirit of being healthy and having healthier relationships and boundaries
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with everyone,
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I just couldn't do it.
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So yeah, it was a chapter closed and I'm
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that is probably one of the longest relationships i've been in professionally um in
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terms of like having a provider and i i talk about this a lot um second to toby
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second to toby who is not uh my provider but my spouse um yes that's my spouse's
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name um
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Toby and I have been together for about a decade in September, which is crazy.
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Given all the transition, basically... I'm going to jump around.
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Given all the transition, Toby and I are actually going to go to upstate for...
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for a weekend uh for a nice relaxing jaunt upstate i need to heal and be with
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nature and scream into the abyss and hang out with goats and swim a little and be
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in a sauna and have a massage and i'm very excited um and just to focus and and be
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to be in nature i think will be
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the most excited thing for me and and someone who grew up in in hawaii on an island
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i always craved stimulation and travel and um adventure and now that i live in a
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big city i'm just kind of like being i just want to be out in nature um i want to
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be home in nature um
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but I do love living in the city and I love our little house and the family I've
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made and the connections I've made.
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I think,
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uh,
(00:22:07):
amidst transition,
(00:22:08):
one of the best parts of this has been relying on my friends and my,
(00:22:12):
my close chosen family and my friendships.
(00:22:15):
And I didn't realize that friends didn't love as hard as I did.
(00:22:20):
Um, which I know is weird.
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I'm just very giving and generous to people.
(00:22:25):
And I think that's both a gift and a curse.
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Um,
(00:22:29):
But...
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you know, anyone I'd love, I'd do that shit for.
(00:22:33):
But I didn't realize not everyone's friendships were like that.
(00:22:37):
And I think I'm just very selective as well.
(00:22:38):
I don't, you know, it is a lot of energy to maintain those friendships.
(00:22:41):
And sometimes friend breakups are worse than regular breakups, like romantic breakups.
(00:22:50):
Certainly just as bad as, just as painful as therapist breakups too.
(00:22:56):
But I think over the years, I really decided to like,
(00:23:02):
keep my cards close to me.
(00:23:03):
And like, I really only give a shit of people will friendships, especially where they give a shit back.
(00:23:09):
And I also understand the ebbs and flows of time and, and space and distance.
(00:23:13):
And I'm a little more secure in my,
(00:23:16):
my relationships with my friends,
(00:23:19):
especially like my queer platonic friends.
(00:23:21):
platonic you know relationships um but sometimes they're hard the losses of them
(00:23:26):
are hard and you know as i mentioned earlier i had a bunch of friends that i
(00:23:30):
stopped being friends with because of the palestine situation and um it was hard
(00:23:37):
that was a really hard um i'm thinking of one friendship in particular is really
(00:23:41):
really really difficult for me um and yeah people don't get that but it's
(00:23:49):
It's rough.
(00:23:51):
But yeah.
(00:23:53):
So that's been my life so far.
(00:23:57):
25 minutes of this bullshit.
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Does anyone even fucking care?
(00:24:02):
I don't know.
(00:24:05):
One thing I do want to say before I part is that like life is messy and things are complicated.
(00:24:10):
And despite all the pain that I'm going through,
(00:24:14):
I am still trying and it's hard for me to show compassion to myself in these times.
(00:24:18):
But it's like I hope that you can extend some loving kindness to yourself amongst
(00:24:23):
all the bullshit going on.
(00:24:25):
we're all going through it you don't know people's stories and don't assume and
(00:24:30):
it's just like take things easier and slower you don't have to rush things Mars is
(00:24:36):
in Taurus now for astrologers like you could just just truck on it's not a rest
(00:24:41):
it's more of like can you sustain the things that you are already working on can
(00:24:46):
you are you able to like push not push but like
(00:24:50):
are you able to like honor that thing that you're working on and those actions that
(00:24:55):
you're taking in an easeful way in a way where you can it's like small slow steady
(00:25:02):
steps instead of like rushing into it like i'm rushing into it like a mars aries
(00:25:06):
mars would right um yeah this feels good um
(00:25:15):
I'll leave you with that.
(00:25:16):
Just lead with love, everyone.
(00:25:18):
As always, from me, a very Venusian.
(00:25:21):
Very Marshall Venusian.
(00:25:24):
I think the most important thing is just to lead with love and,
(00:25:27):
you know,
(00:25:27):
get your feelings out privately.
(00:25:30):
But... And, you know, sometimes publicly.
(00:25:33):
Just be responsible about what you're saying and who... You know, I...
(00:25:37):
I'm an animist and a pantheist and part of that is really embracing the
(00:25:42):
relationships and being in right reciprocal relationships with the things and
(00:25:48):
people and entities that you are taking part with and in.
(00:25:56):
And that includes yourself, right?
(00:25:57):
Please take care of yourself.
(00:25:59):
Do things to honor your body.
(00:26:01):
Do things to honor yourself.
(00:26:04):
You are a
(00:26:07):
wonderful beautiful soul and thank you for listening to me bitch and hopefully you
(00:26:13):
like this email me back let me know if you listen to this shit i don't know uh
(00:26:18):
email me back on substack like let me know how this went if you want to see more of
(00:26:22):
it what you don't want to see if you don't want to see my stupid fate you know
(00:26:26):
just like let me know how this went and i would love to continue that conversation
(00:26:31):
with you all um have a great rest of your pride um free palestine be gay go go do
(00:26:40):
shit have fun love y'all bye
A Quick Check-In